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Find a Specialist
We know the journey to identifying BHD is not always easy. And finding a specialist can be challenging. We are here to help you find the support you need wherever you are in the world.
We have built up a database of specialists from across the globe who have knowledge of BHD. You can search for a specialist in genetic counselling, kidney, lung, or skin. Simply select your country and area of expertise on our interactive map. Please contact us if there is not a specialist listed near you.
We work with the LAM Foundation and VHL Alliance. The LAM Foundation supports a condition called Lymphangioleiomyomatosis which affects the lungs. The VHL Alliance supports a condition called Von Hippel-Lindau which affects the kidneys. It is often the case that a LAM or VHL specialist will also have knowledge of BHD. Both organisations hold clinics across the world. Visit their website to find a clinic near you.
We rely on patient feedback and our own interaction with the medical and science community to build a network of specialists. We would love to hear from you if you are under the care of a specialist not listed on our map and would like to share this information.
Tim Lahm
Indiana University
340 W 10th St
Indianapolis
46202
United States of America
IndianaTing Guo
Central South University
932 Lushan S Rd
Yuelu District
Changsha, Hunan
41000
ChinaTonya Russell
Siteman Cancer Centre
4921 Parkview Place
St. Louis
63110
United States of America
MissouriToru Arai
National Hospital Organization Kinki- Chuo Chest Medical Center
1180 Nagasonecho
Sakai
Osaka
591-8555
JapanToshinori Takada
Niigata University Medical and Dental Hospital
1 Bancho-754 Asahimachidori
Chuo Ward
Niigata City
951-8520
JapanToshio Kumasaka
Juntendo University
2 Chome-1-1 Hongo
Bunkyo City
Tokyo
113-0033
JapanUwe-Bernd Liehr
Universitätsklinikum Magdeburg A.ö.R
Haus 60a, Leipziger Strase 44
Magdeburg
39120
GermanyVasilios Tzilas
Assistant Professor of Respiratory Medicine
University Hospital Attikon
Rimini 1, Chaidari
Athens
124 62
GreeceVenerino Poletti
University of Bologna
33 Via Zamboni
Bologna
40126
ItalyVera Krymskaya
Penn Medicine
219 Stemmler Hall, 3450 Hamilton Walk
Philadelphia
19104
United States of America
PennsylvaniaVincent Cottin
Louis Pradel Hospital
59 Bd Pinel
Lyon
Lyon
69500 Bron
FranceVirginie Verkarre
APHP
20 Rue Leblanc
Paris
75015
France