Skip to main content
AdobeStock 480198880

Find a Specialist

We know the journey to identifying BHD is not always easy. And finding a specialist can be challenging. We are here to help you find the support you need wherever you are in the world.

We have built up a database of specialists from across the globe who have knowledge of BHD. You can search for a specialist in genetic counselling, kidney, lung, or skin. Simply select your country and area of expertise on our interactive map. Please contact us if there is not a specialist listed near you.

We work with the LAM Foundation and VHL Alliance. The LAM Foundation supports a condition called Lymphangioleiomyomatosis which affects the lungs. The VHL Alliance supports a condition called Von Hippel-Lindau which affects the kidneys. It is often the case that a LAM or VHL specialist will also have knowledge of BHD. Both organisations hold clinics across the world. Visit their website to find a clinic near you.

We rely on patient feedback and our own interaction with the medical and science community to build a network of specialists. We would love to hear from you if you are under the care of a specialist not listed on our map and would like to share this information.

  • Lung

    Tim Lahm

    Indiana University
    340 W 10th St
    Indianapolis
    46202
    United States of America
    Indiana

  • Lung

    Ting Guo

    Central South University
    932 Lushan S Rd
    Yuelu District
    Changsha, Hunan
    41000
    China

  • Lung

    Tonya Russell

    Siteman Cancer Centre
    4921 Parkview Place
    St. Louis
    63110
    United States of America
    Missouri

  • Lung

    Toru Arai

    National Hospital Organization Kinki- Chuo Chest Medical Center
    1180 Nagasonecho
    Sakai
    Osaka
    591-8555
    Japan

  • Lung

    Toshinori Takada

    Niigata University Medical and Dental Hospital
    1 Bancho-754 Asahimachidori
    Chuo Ward
    Niigata City
    951-8520
    Japan

  • Lung

    Toshio Kumasaka

    Juntendo University
    2 Chome-1-1 Hongo
    Bunkyo City
    Tokyo
    113-0033
    Japan

  • Kidney

    Uwe-Bernd Liehr

    Universitätsklinikum Magdeburg A.ö.R
    Haus 60a, Leipziger Strase 44
    Magdeburg
    39120
    Germany

    Visit Website

  • Lung

    Vasilios Tzilas

    Assistant Professor of Respiratory Medicine
    University Hospital Attikon
    Rimini 1, Chaidari
    Athens
    124 62
    Greece

    T: +30 21 0583 1000

    Visit Website

  • Lung

    Venerino Poletti

    University of Bologna
    33 Via Zamboni
    Bologna
    40126
    Italy

  • Kidney

    Vera Krymskaya

    Penn Medicine
    219 Stemmler Hall, 3450 Hamilton Walk
    Philadelphia
    19104
    United States of America
    Pennsylvania

    Visit Website

  • Lung

    Vincent Cottin

    Louis Pradel Hospital
    59 Bd Pinel
    Lyon
    Lyon
    69500 Bron
    France

  • Kidney

    Virginie Verkarre

    APHP
    20 Rue Leblanc
    Paris
    75015
    France

    Visit Website

19 of 20 1 19