Resources
Here you will find key resources about BHD for both you and your doctor that can be read online or printed.
We always want to hear your thoughts on what resources you think could be useful. Contact us with your ideas.
Accessibility
We understand everyone has different needs when it comes to reading and understanding our literature. Please let us know if you require any of the documentation on this website in an accesible format such as larger font. We can print and send this to you anywhere in the world. Adobe offer a read aloud feature for those with visual impairments.
Email us at contact@thebhdfoundation.org
Call us on 020 8050 2091
Write to us at Myrovlytis Trust, 26 Cadogan Square, London, SW1X 0JP, UK
BHD and the Skin
Learn about fibrofolliculomas (the skin bumps seen in BHD) and the treatments for them.
BHD and Travel
This leaflet provides information on travelling with BHD and flying with pneumothorax. It provides guidance on preparing for trips and holiday activities.
BHD Medicard
If you would like to carry some information about BHD and a record of your symptoms in case of emergencies, please download the BHD Medicard. The BHD Medicard can be printed and folded up into the size of a credit card so you can put it in your wallet.
Clinical Introduction to Birt-Hogg-Dubé Syndrome
This leaflet provides an overview of BHD so doctors can confidently recognise BHD. Please print out this leaflet and share it with your doctors.
Family Letter
This is a letter template to help you tell your family about BHD. You can add your own information in between the *stars*. Please do feel free to personalise more of the letter if you would like to.
Lung Collapse Treatment Overview
Learn about lung collapses and how doctors treat them.
The Kidneys and BHD
Learn about BHD associated kidney cancer, its symptoms and treatments available.
Understanding your Genetic Test Results
This guide will help you understand your own genetic test result and interpret the “code” you are given when you get your DNA sequencing results.
Your Introduction to Birt-Hogg-Dubé Syndrome
This leaflet provides an overview of what BHD is, how to get tested and the symptoms.
