Find a Specialist
We know the journey to identifying BHD is not always easy. And finding a specialist can be challenging. We are here to help you find the support you need wherever you are in the world.
We have built up a database of specialists from across the globe who have knowledge of BHD. You can search for a specialist in genetic counselling, kidney, lung, or skin. Simply select your country and area of expertise on our interactive map. Please contact us if there is not a specialist listed near you.
We work with the LAM Foundation and VHL Alliance. The LAM Foundation supports a condition called Lymphangioleiomyomatosis which affects the lungs. The VHL Alliance supports a condition called Von Hippel-Lindau which affects the kidneys. It is often the case that a LAM or VHL specialist will also have knowledge of BHD. Both organisations hold clinics across the world. Visit their website to find a clinic near you.
We rely on patient feedback and our own interaction with the medical and science community to build a network of specialists. We would love to hear from you if you are under the care of a specialist not listed on our map and would like to share this information.
Aaron Waxman
Brigham + Womens Hospital
1100 Olive Way
Boston
MA 2115
United States of America
MassachusettsAbdellatif Tazi
Saint Louis Hospital
1 Av. Claude Vellefaux
Paris
75010
FranceAdam Metwalli
Howard University Hospital
2041 Georgia Ave NW
Washington DC
DC 20060
United States of America
District of ColumbiaAdham Haj Abdulkad
University Hospital St John West Shore
Center Ridge Rd
Westlake
44145
United States of America
OhioAdrian Shifren
Washington University School of Medicine
660 S Euclid Ave
St. Louis
63110
United States of America
MissouriAlan Barker
Oregon Health and Science University
3181 SW Sam Jackson Park Rd
Portland
97239
United States of America
OregonAli Ataya
University of Florida
Gainesville
Gainesville
32611
United States of America
FloridaAllan Glanville
St. Vincent's Hospital
41 Victoria Parade
Fitzroy VIC
Sydney
3065
AustraliaAndreas Janitzky
Universitätsklinikum Magdeburg A.ö.R
Haus 60a, Leipziger Strase 44
Magdeburg
39120
GermanyAnton Kidess
Oakleaf Clinics
3802 Oakwood Mall Dr
Eau Claire
54701
United States of America
WisconsinAri Mosenkis
Cleaveland Kidney and Hypertension Consultants
25301 Euclid Ave
Cleveland
44117
United States of America
OhioAriss DerHovanessian
University of California
1153 Franklin St
Oakland
94612
United States of America
California